Heroes and Villains

How Two Cancer Breakthroughs Forged Very Different Legacies

Exploring the paradox of similar innovations with divergent public perceptions

Introduction

In the high-stakes world of medical innovation, we often imagine a straightforward narrative: brilliant scientists develop life-saving technologies, and grateful patients receive their benefits. But the reality is far more complex, shaped not just by scientific merit but by business strategies, public perception, and the delicate balance between profit and patient access.

Nowhere is this duality more striking than in the parallel stories of two groundbreaking cancer technologies that emerged in the 1990s: Genentech's Herceptin® for breast cancer treatment and Myriad Genetics' BRACAnalysis® for hereditary cancer risk assessment 1 5 .

Both represented monumental scientific achievements. Both were protected by extensive patent portfolios. Both addressed breast cancer, a disease with powerful advocacy groups and public attention. Yet one company was celebrated as a corporate hero while the other was vilified as a ruthless villain 1 . What caused these divergent paths, and what does this reveal about how we judge medical innovation? This article explores how identical scientific and legal foundations can build strikingly different public narratives in the delicate ecosystem of healthcare breakthroughs.

The Science Behind the Treatments

Two different approaches to fighting cancer

BRACAnalysis®

Diagnostic Test

Identifies mutations in the BRCA1 and BRCA2 genes to assess hereditary cancer risk.

  • DNA sequencing of blood/saliva samples
  • Informs prevention and treatment decisions
  • Up to 65% breast cancer risk for BRCA1 carriers 6

Herceptin®

Targeted Therapy

Monoclonal antibody treatment for HER2-positive breast cancer.

  • Blocks HER2 receptor signaling
  • Directly treats existing cancer
  • Effective for 15-20% of breast cancers
Feature BRACAnalysis® Herceptin®
Type Diagnostic test Therapeutic drug
Function Identifies BRCA1/2 gene mutations Blocks HER2 receptor signaling
Primary Use Assessing hereditary cancer risk Treating HER2+ breast cancer
Scientific Basis DNA sequencing of blood/saliva samples Monoclonal antibody targeting
Impact Informs prevention and treatment decisions Directly treats existing cancer

Parallel Development Paths

The race for breakthroughs in the 1990s

1990: BRCA1 Link Discovered

Dr. Mary-Claire King at UC Berkeley links a gene on chromosome 17 to hereditary breast cancer 1 .

1994-1995: BRCA Genes Sequenced

Myriad Genetics team led by Mark Skolnick sequences BRCA1 (1994) and BRCA2 (1995) 1 .

1990s: HER2 Research Advances

Research establishes HER2 overexpression in aggressive breast cancers .

1998: Herceptin Approved

Genentech receives FDA approval for Herceptin for metastatic breast cancer 3 7 .

Patent Protection Established

Both companies secure extensive patent protection for their technologies 1 .

The Narrative Divergence

How business strategy shapes perception

Myriad Genetics

Controversial Approach
  • Exclusive control, limited licensing
  • Adversarial with researchers and advocates
  • Sole provider, limited options
  • Supreme Court case on gene patenting
  • Public perception: "ruthless monopolist"

Public Perception

Genentech

Collaborative Strategy
  • Licensed to multiple diagnostic companies
  • Collaborative engagement with advocacy groups
  • Multiple testing options available
  • Limited legal controversy
  • Public perception: "corporate good citizen"

Public Perception

HER2 Testing Methodology

The scientist's toolkit for accurate assessment

Test Type Procedure Interpretation Next Steps
IHC (Immunohistochemistry) Chemical dye stains HER2 proteins

Scores 0-1+: HER2-negative

Score 2+: Borderline

Score 3+: HER2-positive

No Herceptin therapy

FISH confirmation required

Herceptin appropriate

FISH (Fluorescence In Situ Hybridization) Fluorescent labels attach to HER2 genes

Positive: HER2 amplification

Negative: No amplification

Herceptin appropriate

No Herceptin therapy

Testing Protocol

The standard testing protocol begins with IHC because it's more accessible and cost-effective (approximately 20% of FISH costs) 4 . The ambiguous 2+ results—occurring in about 12% of cases—require confirmation with the more accurate but expensive FISH test 4 .

Accuracy

This balanced approach correctly determines HER2 status in approximately 96% of patients 4 . This testing ecosystem stands in stark contrast to Myriad's exclusive approach with BRACAnalysis.

Key Comparative Data

Economic factors, clinical impacts, and stakeholder engagement

Economic Factors

Herceptin®

~$50,000 per year of treatment 4

Significant survival benefits

BRACAnalysis®

~$3,000 per test 1

Questioned value of exclusive pricing

Clinical Impact

Herceptin®

Cardiac complications 3 7

Requires careful monitoring

BRACAnalysis®

Psychological and ethical risks 6 9

Life-altering decisions

Stakeholder Engagement

Herceptin®

Corporate leadership award 1

Strategic engagement with advocates

BRACAnalysis®

Adversarial relationships 1

Negative media coverage 1 5

Scenario BRACAnalysis Result Herceptin Eligibility
Positive Findings BRCA mutation identified → consideration of risk-reducing surgeries or enhanced screening HER2-positive status → Herceptin therapy initiated with chemotherapy
Negative Findings No mutation detected → routine cancer screening recommended HER2-negative status → alternative treatments pursued
Uncertain Results Variant of uncertain significance (VUS) → continued monitoring and family assessment Borderline IHC (2+) → FISH testing required for definitive determination

The Patent Paradox

Intellectual property as scapegoat

The most intriguing aspect of the Myriad-Genentech comparison is what scholars have termed the "patent paradox" 1 5 . Both companies relied heavily on patent protection, yet patents bore the brunt of criticism in the Myriad case while attracting little attention in the Herceptin story.

Why did patents become the scapegoat?

The evidence suggests that patents alone don't determine public perception—it's how companies exercise their patent rights that triggers backlash 1 . Myriad's business strategy of exclusivity and limited access, enabled by patents, created the controversy. Genentech's approach of licensing and collaboration, using those same patent rights, generated praise.

Key Insight

As one analysis concluded, "Patents were a necessary but not sufficient cause of controversy" 1 . The distinction lies in corporate citizenship—how companies balance legitimate profit motives with responsibility to patient communities and the broader scientific ecosystem.

Conclusion: Lessons for the Future of Medical Innovation

The twin stories of BRACAnalysis and Herceptin reveal that medical breakthroughs are judged not only on their scientific merit but on their implementation. We celebrate innovations that balance commercial success with patient access, and question those that prioritize exclusivity over inclusivity.

As we enter an era of increasingly sophisticated genetic technologies and targeted therapies, these cases offer crucial lessons for companies, clinicians, and patients. The framework of hero versus villain may be simplistic, but it reflects real values in how we expect medical advances to be developed and delivered.

The next generation of breakthroughs—from CRISPR-based therapies to AI-driven diagnostics—will face similar scrutiny. Whether their developers are remembered as heroes or villains won't depend solely on the science, but on their commitment to equitable access, transparent practices, and collaborative spirit. In the delicate ecosystem of medical innovation, corporate responsibility may be the most important patent of all.

References